Week one down, one to go.......

This has been a tough week for me and for Keegan. Mr Keegan is teething, and has a bad cold. Mr Fussy is more like it. He's not his usual smiley self. In addition, this week he had 2 follow up appointments at Children's Hospital and an appoitment with Dr. Melamed, the Immunologist here. We had good news, no news, and not so great news.

I guess I will start with the good.....
The Urology Dr. cleared Keegan, so we don't have to Catheterize him anymore. YEAH!! This news made the 2 hours Keegan and I waited to see the Dr . totally worth it. Keegan also saw the Rehab Dr's and some of his PT's. They were all so excited to see him and see how he is doing. The Doc's thought he looked good, like he had improved since they had seen him last (about 7 weeks prior.) Drew was able to get Keegan to kick his left leg so they could see, so that was awesome.

The Rest........
The visit to the Immunologist was good but left me again with the realization of how serious and aweful this all really is. Keegan's blood tests confirmed his severe allergies to peanuts, and also showed allergies to nuts, bananas, and wheat. Wheat was a new one. So now in addition to being off dairy, Keegan is now off wheat, and soy. Now I'm left navigating uncharted waters. The Dr. prescribed vitamins, and some allergy meds and a very limited diet. In addition, his results showed some anomolies in Keegan's immune system showing that Keegan has little or no immunity to some of the things that he's already been vaccinated against, and stranger still that his IVIG treatment should have boosted. We are not able to get Keegan vaccinated for many common and scary illnesses this year due to the IVIG treatment, so we are to keep Keegan out of the public as much as possible. No stores, malls, daycare centers etc. It's going to be a very long winter. I'm already getting cabin fever just thinking about it. The Dr. wants us to come back in a month to consider more IVIG. Keegan had this treatment in the first week of his illness, it is a immunglobin blood treatment that for some reason shows ability to help reverse peralisis. Since Keegan has developed some small movement in his legs, (mostly his left) in the last month or so, the Dr thinks a conservative approach is best.

Well, that's it. We leave for Johns Hopkins and Kennedy Kreager Institute on Tuesday. Keep us in your prayers. Thanks.

SOAP BOX.....
If anyone is considering having another baby......I would definately, no matter what the cost...bank your cord blood. Our Dr mentioned to us a recent case that made the news of a baby with paralsys from cerebral palsey who was healed by stem cells from his own cord blood. Makes me want to cry. If only I had done it. At the time the $2500 fee and monthly/annual payments seemed like a lot, and I didn't know anyone else that had done it. Trust me.... It's priceless. I would pay a million dollars to have it now.